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Sisters4Prevention Breast Cancer Stories and Survival
Since my diagnosis fourteen years ago, I have been dedicated to researching lifestyle changes and supporting clinical research to achieve the prevention of breast cancer. My goal is to raise awareness of the need for research funding for the primary prevention of women's cancers and to share information to help those facing this journey. My posts are educational and include my journey with bilateral breast cancer and my year of treatment including a double mastectomy and reconstruction. I have been a breast cancer advocate since 2010 and have served on panels at the department of defense breast cancer funding review programs. My website shares all the information I have collected and verified from long term survivors and medical evidence. I am not a medical professional, simply a teacher who hopes to make a difference by sharing information. I presently serve as one of three breast cancer advocates on the pending clinical trial under the direction of Dr. Vincent Tuohy at the Cleveland clinic to prevent the recurrence of triple negative breast cancer, the most lethal form of the disease began in the Fall of in 2021.I am a graduate of the National Breast Cancer Coalition's Project LEAD and have lobbied Congress for additional funds for prevention clinical trials for breast and ovarian cancers. In 2022, I was invited to be a Komen Advocate in Science. Stay tuned...
Sisters4Prevention Breast Cancer Stories and Survival
Interview with Ann Fonfa founder of the AnnieAppleseedProject
Ann Fonfa was diagnosed with breast cancer in January 1993. She was suffering from extreme Multiple Chemical Sensitivity, a still not recognized illness. She avoided chemotherapy, hormonal and radiation treatments using surgery and natural strategies to survive. Told she was stage IV in 1997, Ann added personalized Chinese herbal prescriptions to her complex complementary protocol.
In 1999 she founded Annie Appleseed Project, an all-volunteer cancer nonprofit sharing evidence-based information on complementary therapies (Integrative Oncology). She has spoken at many conferences and events, been interviewed and presented posters. Her work continues to educate and inform the community of people with cancer as well as all in oncology. The Annie Appleseed Project has presented a lot of information on males with breast cancer and on the LGBT community. The website had an international section as well.
Ann serves on the board of directors for the National Breast Cancer Coalition and has been an active grant reviewer for journals and the Dept of Defense, for which she recruits other cancer survivors.
She is well-known for moving awareness forward. Ann spoke at events around the world and is very proud of her work. She doesn’t take personal credit for the interest around Integrative oncology but she was the charter Advocate member of the Society for Integrative Oncology. It’s time is NOW.
Today many in oncology acknowledge the need and value for exercise, nutritional changes, handling stress and more.